I have Vasovagal Syncope. It is an issue with the heart where the heart stops and after a while picks back up and starts again. We found out while doing an EEG to check on my seizures. Had a seizure and the Neurologist found that my heart stopped for 70 seconds. This apparently is not good. He then proceeded to send me to a Cardiologist to find a solution to this problem. They found that what has been happening all along is that my heart has been stopping which stops blood flow to the brain which then causes me to seize. The Cardiologist talked with a few other doctors and came to the conclusion that I need a pacemaker. This is not something I particularly want because there are risks involved with having a pacemaker. The main risk is having to replace the wires if they ever break--which they most likely will in my lifetime because I am so young. All in all, I do not want the pacemaker because I am stuck with this machine in my body for the rest of my life, but on the other hand I do not want to go through life worried about my heart stopping! In weighing the risks the doctors find that there is more rick of me hurting myself through my heart stopping unexpectedly as opposed to the risk of being damaged during a surgery.
It is a strange feeling to have to make a life changing decision on my own. I know I have other people to help me with it and to give me theri opinions, but as my brother pointed out, they do not have to live with this fro the rest of their lives, I do so ultimately I have to make the choice...
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2 comments:
What I find interesting is that you don't have this INSTEAD of epilepsy, you have this in ADDITION to epilepsy. Very impressive, my friend. Two rare conditions? You're just trying to prove the odds wrong! :)
Love you!
And don't judge me, but when I looked at that link the first thing I saw/read was:
"Exertion, such as straining on the toilet"
The mystery is solved!!!!
Now I have to apologize cause I'm sure a lot of serious people read your blog. Its not my fault that my eyes were resting right at that height when I loaded the page... :/
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